NORDICHI 2012 WORKSHOP - Designing for Self-Care: Acknowledging the Home-Clinic Difference

Accepted papers

Analysis and Visualization of Clinical Data through Interactive Care Pathways
Panos Balatsoukas, Richard Williams, Emma Caruthers, John Answorth and Iain Buchan

Abstract
This paper presents the visualization techniques used to support the design of a novel tool, called COCPIT, specifically focused on the development of interactive care pathways. Care pathways define the sequence of steps involved in the provision of care to patients (e.g. from initial admission to a hospital, to diagnosis and treatment). The COCPIT tool makes use of user-defined visual care pathways to manage and analyse large data sets of clinical data (e.g. electronic patient records) as a means of supporting decision making for health policy making.

REMPAD: Reminiscence Therapy Enhanced Material Profiling in Alzheimer and Other Dementias
Yang Yang, Adam Birmingham and Cathal Gurrin

Abstract
This paper describes a touch screen-based system to facilitate digital reminiscence therapy with mild to moderate dementia patients enacted in a group setting. This system produces a personalized reminiscence experience based on interactive multimedia content. It uses proactive recommendation technology to profile each participant and groups, and recommend multimodal content from the Internet to match these profiles. Based on the initial positive findings from pilot study, we produced our prototype system. We are now in the process of performing evaluation of such reminiscence support system at caregivers’ homes and hospitals with large-scale user trials.

Interactive Scenario Simulation to Learn Medical Technology in the Patient Care Context
Johanna Persson, Mattias Wallergård, Elisabeth Hornyánszky-Dalholm and Gerd Johansson

Abstract
Caring for intensive care patients involves extensive use of medical technology. When staff are educated in working with these devices, the focus is on practical management. The context in which they are used is however very complex and the device cannot be seen as a separate component. Knowledge about for example the patient’s medical status and background must also be considered when acting on a specific alarm. There is a gap between learning how to handle the medical technology and learning how to care for the patient that we believe could be bridged by making advanced, educational aids available in the daily practice. We present a prototype of an interactive computerbased scenario simulation for learning to work with medical technology in the patient care context. The paper describes the user-centred design process and the prototype itself, and concludes with a discussion about the motivation of using this type of educational aid.

Lessons Learned From a Lightweight Context-Aware System for Achieving Reliable Home Blood Pressure Self-Measurements
Stefan Wagner, Karina Kusk, Ditte B. Nielsen, Troels Thylstrup, Niels H. Rasmussen, Jacob Jørvang and Christian F. Pedersen

Abstract
We investigated how a lightweight and context-aware system designed for sensing incorrect usage of a blood pressure device was perceived by a group of four patients. We found that using a context-aware system for improving adherence is feasible for overcoming the challenges related to moving from the supervised clinical setting to the unsupervised home setting. We also found that patients are willing to accept more advanced monitoring systems and increased surveillance, as long as it is only used during self-measurement periods and is proportional to the severity of the disease.

DoDoneGone: A web- and mobile service to manage exposure therapy outside the clinic
John Paulin Hansen, Morten Fenger, Lone Decker, Wang Wusheng, Panayiotis Lipiridis

Abstract
DoDoneGone is a web- and mobile service for people with anxiety-problems. It teaches them to handle activities they are afraid off by a gradual exposure to the fear-provoking situations. Exercises are planned and monitored on a website and conducted in the field with guidance and support from the clients mobile phone. The DoDoneGone website makes it possible to share training programs and to conduct clinical trials.

Opportunities to Support Medication Intake across Boundaries of Care
Nervo Verdezoto, Erik Grönvall

Abstract
This paper depicts findings from a project focusing on designing medicine management support for nonclinical settings. In particular, we discuss how we can support older adults across boundaries of care in planning, informing, reminding and documenting activities. Additionally, we present opportunities when designing for everyday medication management. We use MediFrame, a tablet based app that supports older adults in their medicine intake at home and findings from its Participatory Design process to support our argumentation.

Exploring digital artifacts in physical rehabilitation
Jeppe Boutrup

Abstract
This paper presents experiences from two projects exploring digital artifacts in physical rehabilitation. The aim was to explore possible solutions to issues such as compliance to exercise regimes and lacking insight into the exercises performed in the home. Potential users in the form of therapists and rehabilitees were included in workshops, user evaluations and user enactment at the clinic and in the home. The projects presented different design proposals, one being a digital training journal running on a tablet device, which allowed users to record their exercise sessions and create verbal or written annotations. The other proposed design was a Kinect based system which features live visual exercise feedback and competitive elements as tools of motivation. Users expressed willingness to share their exercise performance data with each other and the therapists. They were interested in receiving live feedback on their exercises and have access to historic performance data. Finally the current rehabilitation practice was found to be fitting and willing to implement digital artifacts into the normal work surrounding rehabilitation.